Author: siskinbob

Formerly employed by MOD and IBM, now retired

Road Trip – The Full Story – Pt 1 Thursday 28th August


First and foremost, the trip was for us to visit family. My grandson Ryan, his wife Rachel, and their three daughters, live in Sunset Beach, just outside of Geraldton. And this was the first opportunity for Gerry and I to meet the girls. The eldest, Talullah, was born in 2022, the middle girl, Loxley, was born in 2023, and the youngest, Sunday, was born just over a month ago.

Mid morning, car packed and my daughter, Denise, took the first stint of driving, primarily to get us clear of Perth city and suburbs, but also because she knows the route like the back of her hand. Driving through the city, the traffic was quite heavy but thinned out noticeably as we headed north on the Tonkin Highway. Near Muchea, we jumped onto the Brand Highway and then with a few kilometers behind us, we made a pit stop at Cataby.

From Cataby, I took over the driving for the run-up to Eneabba. At times the road ahead, and behind us was, pretty much, empty of any traffic. Although, occasionally, we would encounter road trains thundering down the road towards us. And, of course, the ubiquitous “grey nomads” with their off-road vehicles and caravans.

One feature of our journey was the vast fields of Rape, or Canola as my daughter calls it. For clarification the term “canola” denotes a group of rapeseed cultivars that were bred to have very low levels of erucic acid which is mildly toxic.

Rapeseed Crops – Canola

The glorious yellow of the flowers spread across the land on either side of the road. Prior to this trip, I had only ever seen sights such as these in the UK.

Rapeseed Crops – Canola

At Eneabba, we stopped for a loo break and also to grab a bite for lunch. Lunch consisted of chili sausages for me, some sort of pie for Gerry, and a burger for Denise. All of us thought the fare was of mediocre standard, but it filled the void, and we had the promise of a roast dinner to look forward to.

From Eneabba its about another hour and forty five minutes drive to Geraldton and Sunset Beach. Denise resumed the driving and it seemed that in no time we had arrived in Sunset Beach.

We had booked a chalet, at the Sunset Beach Holiday Park, for the weekend. And, arriving at reception, we checked in, and were soon esconsed in our accomodation. From the outside it looks a bit like a shipping container but inside was very fresh and modern looking, with all amenities. More than we needed as we were only going to sleep, shower and brew coffee here.

2 Bed Chalet - Sunset Beach
2 Bed Chalet – Sunset Beach

And so, with car unpacked, we headed up to Ryans house where we were made to feel really welcome, greeted as we were by two very excited young girls and a small dog. The adult welcome was a little more restrained.

The next few hours were spent with the adults chinwagging, getting to know the two girls and the glamourous grandmothers taking it in turns to hold the baby. As promised, we were fed to the point of plumptiousness with a fabulous roast cooked by Ryan after which we bade our hosts a temporary farewell and headed back to our accomodation for a good nights sleep.

Hutt Lagoon


Aka The Pink Lake, near Port Gregory, WA. Hutt Lagoon is Australia’s Most Unique Lake

Hutt Lagoon, or the “Pink Lake,” is a marine salt lake in Western Australia, famous for its vibrant pink color caused by the Dunaliella salina algae and high salt content

When we arrived the lake was a beautiful pink colour. Then the wind got up and the colour disappeared. Thankfully, the wind dropped away.

Roadtrip


Today, Thursday 28th, we are heading up to Sunset Beach, WA, to visit our rellies, my grandson and his family. And we are looking forward to seeing our three great granddaughters, for the very first time.

We have just pulled in to the roadhouse at Cataby, making a pee stop, where these beautiful flowers are enjoying the sunshine.

It is almost as if they are cheering us along our way.

The WA weather is also behaving itself. The sky is blue and clouds white and fluffy. Not the dark and brooding ones that have filled the skies around Perth for the last few days.

Remembering


Yesterday,  9th August, would have been Steves birthday. It was the first since his passing earlier this year.

We thought we would honour his name by having a meal and raising a glass at one of his favourite destinations.

And so it was that we found ourselves heading up to Mindari to visit The Boat. Mindari is about 60km north of Perth, normally an easy drive of an hour or so.

The Boat @ Mindari, WA

However, yesterday was very wet, and the drive took a bit longer. The conditions on the highways were diabolical. The wipers were going at their max rate for most of the journey, and the road spray was severely reducing visibility.

Having safely arrived at The Boat, we grabbed a table and ordered our drinks and meals. Obviously, given the weather conditions, we opted to sit inside.

Chilli Mussels for Gerry, Garlic Prawns, and Rice for Denise and Battered Barramundi with Chips for me. Oh, and a sharing platter of cheesy garlic bread. All the food was, as usual, very well cooked and tasty.

We raised a glass to Steve and wished him a happy celestial birthday, The Boat, being  one of his favourite eateries, he would have approved.

While having our meal, I noticed that we had an observer, keeping tabs on us.

The drive home was much better, dry and sunny.

Blowing The Cobwebs Away


We have been in WA for nearly a month now. Having travelled out from the UK to support our daughter following the passing of Steve, her husband.

Up until now, our time has been filled with preparations for the funeral and general mundane household shopping trips and, most recently, collecting Steves ashes from the funeral home.

To be honest the weather hasn’t been the best but yesterday we managed to get out of the house for a couple of hours. This is the  first time that a trip out hasn’t had a purpose. By that, I mean it was, just to get some fresh air, for a change of scenery.

Interesting Sculpture – Rockingham, WA

We opted to drive down to Rockingham, forty odd kilometres south of Perth, to walk along the foreshore. After a forty-five minute drive, we found ourselves on the prom.

The sun was shining, and the sky was blue, and with a temperature of 20°C it really was very pleasant. We had already planned to have fish ‘n’ chips, and so it was we found ourselves sitting in the sunshine enjoying an al fresco lunch.

Gerry, Denise & Molly on Rockingham prom

Freshwater Cobbler in crispy batter with crispy but fluffy chips. The Cobbler was a first for me. The lady who served me in Nae’s Seafood & Grill informed me that it was a kind catfish. It was very tasty, but it’s not Cod or Haddock. However, it did hit the spot.

View From Rockingham Foreshore

Then, it was time to head back along the prom and back to the car. And, after a forty minute drive home, we were soon sitting in the lounge with a very welcome cuppa.

The brisk, but not unpleasant, sea-breeze definitely blew away the cobwebs we had accumulated.

Shame the weather forecast for the next few days shows a temperature drop and plenty of rain and thunderstorms.

Dog Walk


Not far from my daughters house, there are these pretty lakes.

On previous visits, they have been all but dried up, muddy pools only suitable for hippos.

However,  there have been days of wall to wall rainfall interspersed with beautiful sunny days. As a consequence, the lakes are perhaps a little over full.

I took these photos yesterday while out walking the dog.

Bobs Bowel 13 – Chemo !!!


It’s 19th May, 2025 and I have an appointment with an oncologist. This is to discuss potential precautionary chemotherapy following my hemicolonectomy at the end of March.

I am introduced to Dr Mutheramalingam, known as Dr Ram.

He seems to have done his homework, as he tells me all about the various conditions that I am receiving treatment or surveillance for, including Prostate Cancer, Type 2 Diabetes, and possible Non-Alcoholic Fatty Liver Disease (NAFLD). And, of course, not to forget the main event, T3 N1b Colorectal adenocarcinoma, the reason I am in his office.

Dr Ram procedes to explain the situation i.e. the positive results of the surgery and that the scan prior to surgery had not shown any signs of cancer elsewhere.

Interestingly, he mentions that the lesion on my lung seems to have disappeared. This lesion was strongly suspected to be Prostate Cancer, and is the reason I have been on course of regular Prostap injections. We discussed the possibility of my no longer needing the injections but he wanted to defer that discussion to my Urology consultant.

Dr Ram then went on to describe my chemotherapy options, which appear to one of two.

  • Option 1:
    Combined tablet and chemo infusion over a period of three months
    This option comes with a range of potential side effects which also include damage to my liver which is already under surveilance due to the NAFLD.
    This treatment offers a potential 12% increase in my survival prognosis.
    The chemo infusion would be administered at the hospital and therefore require multiple trips to the Queen Alexandra hospital, parking fees, and the time spent during the infusion.
  • Option 2:
    Tablet only treatment over a period of six months
    This option also carries the full range of potential side effects with only a 10% increase in my survival prognosis.
    The tablets would be self administered at home,each two week cycle being 4 tablets twice a day, followed by one weeks rest. During the weeks rest I would have a blood test and a telephone consult prior to starting the next cycle.

It seemed to me that option 1 only giving an additional 2% and also introducing the risk of liver damage was not a good deal. Also, the regular visits to hospital for the chemo infusion was not very appealing, given the many medical appointments I have had since diagnosis of the tumour.

I have therefore opted for option 2, the self administed tablet only chemotherapy.

Bearing in mind the positive results from the surgery we, the medics and me, don’t know for sure if I have any cancer in my body. This chemo, being precautionary, may not actually buy me any more time.

Since that initial oncology meeting I have started the chemotherapy regime having been prescribed Capecitabine. I have just completed my third cycle.

Capecitabine comes with a whole range of potential side effects which include the following:
Appetite loss, Diarrhea, Vomiting, Nausea, Stomatitis, Abdominal pain, Fatigue, Weakness, Hand-foot syndrome, Oedema, Fever, Pain, Headache, Hair loss, Dermatitis, Indigestion, Shortness of breath, Eye irritation, and Myelosuppression.

So far, after nine weeks, I am only experiencing fatigue which manifests itself by me dropping off into a deep sleep with little or no warning, usually when sitting quietly reading of watching the TV. Thankfully, this does not happen while I am actively involved in something.

In the first week or so I did notice, thanks to my smart watch, that my heart rate was spiking quite high. That is I was hitting over 130 beats per minute with no apparent cause whereas prior to commencing the chemo it was rare for my heart rate to go over 80 bpm. I contacted the oncology department and they told me it was probably my body getting used to the chemo. Certainly, the spiking has reduced, both in frequency and magnitude.

So here I am, cycle three completed. What now?

Well, due to a family issue I have had to travel and will be away from the UK for three months. This means that continuing with the chemo is problematic. Because of the type of drug that Capecitabine is and the need for regular blood tests, they cannot prescribe sufficient doses in advance for me to continue the regime.

Apparently taking a short break from the chemo is OK but two to three months may be too long for me to restart when I am back in the UK.

So I am exploring getting access to the local medicare here in Australian so that I can then see a doctor and hopefully get prescriptions for Capecitabine and also the requisite blood tests. There is a reciprocal health insurance arrangement between the UK and Australia but this might just be too complicated to manage.

I have applied to join Medicare and I am hoping that having been previously been accepted it will be pretty much a rubber stamp exercise.

We shall see!

Bobs Bowel 12 – Home Again


After ten days in hospital, I was home, at last. And what a difference it makes.

To start with, home is much quieter. As I said in one of my previous posts, I didn’t realise just how noisy hospitals are, I think the staff become quite blasé  about their speech levels, they also don’t seem to worry about banging cupboard doors and trays around. And then there are the various bleeping machines measuring life signs, pumping fluids and inflating air beds.

On the subject of machines pumping fluids i.e. saline drips etc.  The nursing staff seem to be immune to the sounds of the various alarms emitted by those machines. For example, I was hooked up to a saline drip and my pump started beeping. Nobody came but, luckily, I was able to see the small display screen which was indicating air bubbles in the line. I’ve seen enough crime dramas to know that air injected into your veins doesn’t end well. So I had to press my help button and a nurse duly arrived to redo the connections.

Anyway, being home means I don’t have to contend with the noise anymore. Another positive for being home is being in your own bed. My first night home I got seven hours sleep. Amazing, considering I don’t think I had a decent night’s sleep all the time I was in the hospital.

Sad to say I wasn’t able to match that in the days that followed, typically only getting three to four hours each night according to my smart watch. Having consulted “Dr Google” it seems that lack of sleep is not unusual after significant surgery. Thankfully, my sleep patterns have, slowly, returned to normal.

Another big difference between hospital and home is the attitude of the staff versus friends and family. In hospital the staff, whilst caring for you, encourage you to get up and about. The want you to walk the corridors, go and have a shower, and so forth. Movement helps with the healing process and also helps get the digestive processes going. Apparently it also helps dissipate the gasses in the abdomen. These are the gasses used to inflate the abdomen during the laparscopic surgery. Once home I found that, family in particular, were very protective of me. Every time I moved, someone was asking am I all right, do I need something, when all I am doing is adjusting my seating position as my bum has gone numb.

I did find that, as predicted, I was quite tired and dozed during the day. But that wore off over a few days and I was soon able to help with meal preparation, despite my wife intercepting me at every opportunity.

Of course I had to be careful about what I attempted to lift, push or pull. The standard “boiling a kettle” to make a cup of tea for two was a definite no-no. However, I am beginning to question the advice I was given. I think the advice about lifting and bending etc. is somewhat generic and based on old surgical practices. That is to say, based on abdominal surgery, which involves being cut from stem to stern with massive intrusion to the  muscles. My surgery was robotic laparascopic, so I only had a few holes where the rods were inserted, so minimal intrusion to the abdominal muscles. Yes, there is a letter box cut below my belly button, where they extracted the tumour and colon after it was cut away. However, I felt no muscular tensions down there. Rather, all muscular sensation tended to be in the upper abdominal area.

The point I am  making is that I did not feel any kinds of pain, soreness, or any other sensations around the wound site’s while I was moving around. Obviously, I didn’t want to do anything extreme but was I being too cautious!

I was also told that I shouldn’t drive  for six weeks. Or, at least, until I was able to perform an emergency stop without any pain. Also I had to be able to make rapid turns of the steering wheel. What wasn’t clear was who decides that I am fit, and how do “they” decide?

With driving, there is always the question of insurance. I had read that you are supposed to inform your insurance company that you have had major abdominal surgery. However, my insurance company does not have that requirement, but recommend getting your doctor to write a letter stating that you are fit to drive.

Getting to see a doctor might be a bit of a challenge here in the UK at the moment. I am told I will have a meeting in surgical outpatients in five  to six weeks.  That would tally quite nicely, if it happens.

I did phone the colorectal team and was informed that the decision, of when to drive, was down to me. I was also advised to practice braking in my car whilst stationary on the drive. If I experienced any pain, that would be a good indicator that it was too soon.

Another positive aspect to being home was having proper meals, with more solid foods on the menu. During my time in hospital I transitioned from clear fluids, free fluids, nil by mouth, clear fluids, free fluids and finally on to low fibre meals. On discharge I was expecting to be given some dietary advice, but that didn’t happen. So left to my own devices I have pretty much reverted to my previous foods. I have had jacket potatoes and ate the crispy skins, had roast chicken pieces and ate the skins. Also my daughter cooked us a chicken curry, medium heat. Oh what a joy as these were all things I had to avoid, from the day my tumour was diagnosed, up to the day of the surgery.

A few days after discharge I received a call from the colorectal team. The purpose of which was to inform me of the histology findings.

Firstly, the tumour removed was confirmed to be a carcinoma “something or other”. She did say, but I promptly forgot the name. Anyway, they took the tumour with good margins which were found to be clear of cancerous cells. So good news.

Secondly, they took out sixty five lymph nodes, of which two were found to have cancerous cells. Again, good news, but followed up with a precautionary offer of a consult with an oncologist.  Heavy emphasis on the “precautionary” statement.

So it is likely I will have some chemo. What form that will take I have yet to discover.

In the future, after five to six weeks I should have a Surgical Outpatients appointment.  Six months down the road I should have a virtual (telephone) consult to see how I am fairing. At the twelve month point I will probably be invited in for a colonoscopy. It is also anticipated that I will have an annual CT scan for the next five years.

So watch this space, for future developments.