I have become obsessed with bowel movements, or rather the lack of them.
After my CTC I restarted taking a laxative, Molaxole, but this was proving to be non productive. As well as the laxative I have also resumed eating normal foods, not the low residue diet, which is remeniscent of baby food.
The lack of bowel movements over the last few days, and the constant feeling that I just ate a full Christmas roast is troubling. The indications are that my tumour is severely restricting the flow in my digestive system.
And that is definitely not good news.
I have been consulting Dr Google, which is not always a good thing. But, in this case the concensus seems to be that, if my tubes are truly blocked, then continuing with the laxative can be counter productive.
Regardless of biopsy results I think it is imperative that the tumour is removed and tout de suite.
As I have been typing this post, and after several fruitless trips to the bathroom, I have finally had success. The fullness that I have been feeling is easing so I think I will carry on with the laxative for the time being. Based on my recent past experience, my bowel seems slow to react. So I have taken another dose of Molaxole and will drink plenty of fluids.
Tomorrow, I will contact the Colorectal Unit for some advice but regardless, I am seeing a consultant on Tuesday with whom there will be a full and frank discussion.
A few days ago, I posted about the NHS Poo Sticks game. There then followed a visit to the hospital for a Colonoscopy which led to my cancer diagnosis.
Apparently my tumour is positioned up at the top right corner in the diagram, where the transverse colon joins the descending colon.
Of course, that is not the end of the saga. We are only just getting started.
Shortly after the colonoscopy, at the meeting with the doctor along with the bad news I was given an appointment date for a meeting with the consultant. That is scheduled for 28th January.
After being discharged I headed home to find that the hospital had already been on the phone. I returned their call and was informed that they had an appoinment for me to attend the hospital again. This time for a CT colonography (CTC). Lucky me. I was scheduled in for Tuesday 21st at 08:30.
That was the good news. The bad news was that I had to go back on the low residue diet. OK, it was only for two days this time, starting on Sunday. On the Monday before the CTC, I was to start taking a liquid laxative. Two doses, one at 08:00 and the other at 18:00. No food after that time, just clear fluids until after the CTC.
The liquid laxative, Gastrografin, also contains a dye (contrast medium) that contains iodine and it helps to clearly show the colon on the scan.
Once again my imagination ran riot but reality was a lot simpler. I was expecting to spend the day on the loo, but after a brief eruption in the morning, I suffered nothing until the following morning. Even after the second dose.
Tuesday morning arrived soon enough and I took myself of to the hospital. No sooner had I arrived in the reception area than I was called through. Given a hospital gown to change into and told to take a seat in a waiting area.
I was then called through to have a cannula fitted. This was needed for the dye that they would inject during the scan. After a brief wait I was shown into the scanner room. I have had CT scans before so my anxiety levels were really low. And so it was up onto the scanning table where the unpleasantness started.
Firstly I was asked to lay on my side with my knees up towards my chin. Once in position a tube was inserted into my back passage. This was for the gas that they were going to use to inflate my colon.
As the gas flowed, so my discomfort increased. Initially there was the sensation of my abdomen bloating. This was soon accompanied by stomach cramps which grew in intensity. I was asked to lay on my back and I was threaded through the eye of the donut.
The discomfort was increasing.
They then injected the dye and we played thread the donut again. After a couple of passes I was asked to turn on my side.
Still the discomfort was building. So much so that I was muttering to myself. Something along the lines of “enough already”, “get me off this thing”, “please make it stop”. You get the picture.
After a couple more passes through the donut they came in to put me out of my misery. The gas pipe was extracted and I was led out of the scanning room, across the corridor and shown to a toilet.
It was there that the process of decompression began. It was also there that I got changed into my street clothes. I then went and sat in a waiting area but it wasn’t long before I headed back to the decompression chamber, and then back to the waiting area.
After a short wait I was invited into a small room where my cannula was removed, and then I was discharged.
Over the last few years I have undergone numerous procedures. But this was by far the worst. I have had CT scans before but the added gas takes them to a whole new level. Definitely an experience that I am not keen to repeat.
I am not Jumping Jack Flash and it definitely was not a Gas, Gas, Gas.
Now, I am eating a relatively normal diet but to ensure that my bowel doesn’t become completely blocked I have been prescribed a different laxative, Molaxole. This I have to drink twice a day. It doesn’t taste nasty but it isn’t pleasant. I have to add some orange squash to make it more palatable.
Yuukkk!
So, now I have to wait until Tuesday and the appointment with the consultant.
No, not the children’s game immortalised in the Winnie The Pooh stories.
I am referring to the game played by adults of a certain age. The NHS initiates this game. As part of their Bowel Screening Programme they send a package through the post requesting a sample of your poo. You then return it to them and they analyse it.
I’ve played this game with them for several years. Presumably, I was winning because I never heard back from them. No news is good news, right!
That continued until late last year when I was invited to a telephone consultation.
They had discovered some traces of “non visible blood.” The net of that hour long conversation was their decision to offer me a colonoscopy. I say offer because it was left open for me to decline the procedure.
What sort of cretin would I have to be to decline ?
You are 73 years old. Your body is wearing out. When the professionals are concerned enough to contact you, it’s only polite to accept.
And so an appointment was made for a colonoscopy and a package duly arrived in the post. Said package contained several pages of information about the procedure. It also included a blow by blow script for the preceding seven days and three sachets of Picolax.
It seems, understandably, that before a colonoscopy the medics like you to clear your tubes. So, for seven days I had to follow a “low residue/low fibre diet”. That is to say I had to cut out all foods containing fibres which are hard to digest. This helps reduce the amount of undigested food passing into my large bowel.
Adhering to this diet presents extra challenges when preparing meals. Those bad boy fibres are really sneaky, popping up when you least expect them. Also many of them are contained in favourite five a day fruits and vegetables.
For example you can eat potatoes but not the skins. You can eat pretty much any root vegetable, like carrot, swede, and turnip. Just make sure they are peeled and well cooked. They should be soft enough to mash. No peas, beans, citrus fruit or berries etc. and no seeds or grains. Even onions are a no-no. The list is endless.
Over the last few days I have become a nervous food prepper/eater. I was preparing some bell peppers for dinner only to find that they are not allowed. Similarly, on Sunday I was holding a glass of red wine when I decided to consult Dr. Google. Nope, red wine is not allowed, in fact turns out I should be avoiding alcohol in general.
Yes, you can make tasty meals acceptable for a low residue diet. However, they lack texture. They are also missing key ingredients to take the flavour to the max.
And so, here I am, having completed the low residue diet. Looking forward to my colonoscopy tomorrow. To be honest I am actually looking forward to eating real food tomorrow night. Just one more hurdle to cross, well two actually.
Hurdle number one is that today, 24 hours before my procedure, I am not allowed to eat anything. I can only consume clear liquids. These include water, squash, coke, lemonade, black tea/coffee, clear soup, marmite/bovril/oxo mixed into weak drinks with hot water. By this time tomorrow I will so hungry you may find me gnawing on a table leg
Hurdle number two, you may remember that earlier I mentioned Picolax. Picolax is a laxative and I have to consume three doses. The first was at 08:30 this morning. The next dose is scheduled for 12:30 and the last to be taken at 18:30.
Having read the instructions the only thing at the forefront of my mind is “Make sure you are close to a toilet”