Tag: colostomy

Bobs Bowel 11


So here we all are, on the other side. I survived the procedure. I guess that I should apologise for leaving you all hanging. Since leaving hospital I have had a few things going on with friends and family. And, keeping a blog going does require a degree of concentration and effort. Of which I have had none.

My procedure, I am very pleased to say went well, took place on Monday 31st March. Originally estimated to take 4 – 4.5 hours, actually  took six hours. On regaining conciousness, in the recovery room,  I was given two pieces of news.

Firstly, that they, the surgical team, had taken more than was originally planned. Originally, I was supposed to be having a “left hemicolectomy” but in the end I had an “extended right hemicolectomy”.

Secondly, a bit of very welcome news, was that I did not have a stoma and therefore would not be having to deal with a colostomy bag.

The Hospital Stay

After a brief sojourn in the recovery room I was wheeled along to ICU to spend my first night in hospital. But before I could contemplate sleep I was given a full body bed bath. That was a first for me.

I was also starving, not having eaten since Sunday evening, the day before. But at this time I was restricted to clear fluids.

How noisy are hospitals ? Staff banging cupboard doors, clattering of trolleys and trays and let’s not forget talking at elevated levels. At one stage there was a guy strutting the length of the ward, and back again, speaking into a phone which he held away from his face.

Don’t they realise there are sick people in ICU, trying to rest and recover ?

1st April – Operation Day +1

At around 10:30 the staff in ICU got me out of bed, had me sitting in a chair and brought me stuff to have a wash. To be fair I didn’t stay in that chair for long. It was too upright, not very comfy, made my back ache and my tummy was a bit sore.

But there was a nice view away to the south and west looking out over Portchester, the Isle of Wight and down to Southampton Water. All with blue skies and sunshine.

Still no food, just clear fluids, black tea, black coffee,  water !!! and I’m starving.

Later, on the evening of the same day, they moved me out of ICU and shipped me off to the surgical ward. Sharing the ward with six other inmates and no view.

If I thought ICU was noisy, they had nothing on this ward. I couldn’t see what it was but there was something at the far end of the ward making a sound like a diesel truck on a fast idle. Thankfully after about thirty minutes it stopped. Rumour has it that the noise was from an air bed being inflated !!!

Apart from the noise, another issue I had was the temperature of the ward. On arrival I broke into a sweat and I know, when at home, I  break out at around 25°C. One of the nurses very kindly brought me a fan which improved things but, under cover of darkness, someone snuck in and turned it off.

How Rude!

2nd April – Operation Day +2

A nurse brought me a bowl of warm water for a wash and a change of gown. Ablutions completed I tried to put on the fresh gown which was way to small. When I flagged the size issue I was told that they had no gowns my size and offered me a “shirt”, i.e. an NHS pyjama jacket which was even smaller. The nurse said she would order a larger gown.

Order ? How long was that gonna take?

Anyway, thankfully, someone turned up with a large gown. I should point out that I did have my own pyjamas but due to the various tubes attached about my person there was no way I could get into them. At this time I was catheterised and also having a saline drip.

Time in hospital can pass very slowly. I had prepared for this by bringing in a book to read, also a book of crossword puzzles. I also had my phone on which I do soduku and read via Kindle. The problem was that I couldn’t focus on anything. In fact trying to focus took so much effort I kept dozing.

I had a very pleasant visit from my granddaughter in the morning and, later, my wife and daughter arrived to break up the afternoon.

At last, I was told I could have something to eat. My first meal for three days was a supper of chicken soup, yoghurt, jelly, and vanilla ice cream. Not very substantial but you would not believe how good that chicken soup tasted.

Throughout the day, with each and every visit from a nurse or doctor, I was constantly asked if I have moved my bowels, or if I  have broken wind. At this time my answers were all in the negative.

After supper I was asked what I wanted for brekky. Options were orange juice and/or yoghurt. I opted for the yoghurt.

3rd April – Operation Day +3

I had a visit from the surgeon.  Nice guy. He introduced himself and I promptly forgot his name. He said he wanted to try me on real food, with more substance. He also said they were planning to remove the catheter… yay!! Also, there was mention of the possibility of me going home, either today or tomorrow. This is all sounding good. All of this was discussed while he tapped, squeezed, and generally fondled my belly. Oh, I didn’t mention the gaggle of other medics, around half a dozen, gathered around the foot of my bed. Any privacy or dignity I had rapidly flew out the window.

I was given some of my own daily blood pressure meds. I’ve not had any since before the op. I was also given a dose of liquid paracetamol.  It is thick in texture, very sweet and it tastes of strawberries, Yuuukkk !!!

I don’t remember lunch but supper was Pea Soup with an awful bread roll.  Think the roll was made without any fat, it fell apart when I tried to cut it so that I could butter it. Tried eating it but it just clagged up my mouth. There was also an egg mayo sandwich. I only ate half as it was on some strange, strongly flavoured, malted bread, and again a weird texture. I tried dunking it in the soup but it didn’t help. Obviously my tastebuds had become confused. Hospital food isn’t really that bad. or is it?

During the day I have been getting an acidic feeling at the back of my throat, like indigestion. I mentioned this to a nurse who got me some Gaviscon. It helped a bit.

4th April – Operation Day +4

Bad news, I’ve been sick!! I was told that if I  am sick twice in the day I will be aspirated i.e. have a tube put up my nose and down into my stomach. This sounds unpleasant, and definitely something to be avoided.

Now they are taking bloods to see if I have an infection, and are concerned about the low volume pee. So, I definitely won’t be going home today.

Supper time arrives and I was feeling sick and requested another anti-sickness pill. Supper was chicken soup but I don’t recall eating it.

Even though I’m just drinking water it seems to be sitting high in my tummy. I’m not feeling comfortable at all.

5th April – Operation Day +5

So, I was sick during the night and as a result I was intubated. That was not a pleasant experience. As the tube goes in it causes you to retch and then once inserted you can feel the tube in your throat every time you swallow. The nurse siphoned out nearly a litre of dark green fluid. It appears that my vomiting is due to Ileus, a not uncommon post operative complication after abdominal surgery. In essence the bowel goes on strike

So now I have two bags hanging on the side of the bed. One for  my catheter and one for my nasal tube. I also have a saline drip attached to the cannula in my right arm. It’s almost like being at the centre of a spiders web.

While the tube is in I am nil by mouth,  just sips of water. So back to my starvation diet.

6th April – Operation Day +6

Due to all my attachments I had to call for the commode last night. And, whilst sat on the commode,  my nasal tube took it upon itself to sneak out and fall on the floor. I buzzed for the nurse who got a fresh tube and installed it which again caused me to retch and vomit. Just wonderful. That was at 03:00.

During the day they disconnected my nasal tube from its bag and told me I could go on free fluids. So I had an ice cold glass of milk, and boy did that hit the spot. The milk was, later,  followed by a cup of hot chocolate.

I was told that I can stay on free fluids but they will reconnect the tube to the bag at night time. Some good news, it was confirmed that Bovril is allowed under the free fluids plan so have asked Gerry to bring some in.

Bad news, the blood tests have shown some negative markers, and so, they think I might have developed an infection. Therefore, as a precaution, I have been moved to my own room. Bonus, I have my own window with a view and can open said window, so plenty of fresh air.

In the early evening I had a lovely video call  from my granddaughter and her kids. Jax, who is autistic, saw my nasal tube and immediately wanted to know what it was. We told him I was in hospital. His response was “go get Grandad, bring him home” Unseen by me, Jax trotted off downstairs, let himself out the front door and was trying to get into his mums car. Their dog, Milo, alerted my daughter and she caught him outside. Cute.

7th April – Operation Day +7

Thankfully the nasal tube has been removed and so, it appears, I’m back on the free fluids diet which is some kind of progress. Lunch today was tomato soup, orange jelly, and vanilla ice cream, bliss!!!

In the afternoon, friends, Eric, Mary, and Mo visited for a couple of hours. It was nice to have someone to talk to. Eric and Mary left after an hour which left Mo to entertain me. Unfortunate for Mo, she was soon treated to the sight of me sliding out of bed clutching the back of my gown, carrying my bag of urine (golden handbag) and shuffling across the corridor to the loo. She took it all in good heart.

Todays supper treat was mushroom soup, more jelly, and ice cream. The soup was, once again, very tasty.

After Mo’s departure and having nothing better to do, I read the ingredient list for the orange jelly. Shock, horror, there is no orange in it. There is carotene, I assume that’s for the colour. I had thought that the flavour was a little odd, now I know why.

8th April – Operation Day +8

Finally, I got a decent night’s sleep, the first since the surgery. Also, my tummy is feeling less bloated which, I guess, means some of the gas used during the operation is beginning to dissipate.

Brekky today was rice crispies, orange juice, toast, and marmalade. Actually, to call it toast was a bit of an exaggeration. I think the slice of bread had seen a photo of a toaster but not actually been in one. Still, after being starved and then only getting liquids to eat this was definitely a step up and in the right direction.

After breakfast I was asked to select my lunch, so I chose Beef Lasagne,  scallop potatoes and gravy. More solids … yes!!!

The lasagne was blooming marvellous although, surprisingly, I had to confirm that it was beef, to me it tasted like the best herby pork sausage. So that has triggered the idea that I will try making a lasagne with italian pork sausage meat, when I get home.

I also had a bit of a revelation today. I had a shower, my first since prior to my surgery, and I was so pleased to get my hair washed. The whole shower thing was a bit weird as I still had the catheter in place and so I had to take my golden handbag along with me. But sitting on the provided stool and just letting the water flow over me was superb.

I also had lots of visitors today, so it was a good job that I had that shower … lol.

Todays supper was Lancashire hotpot with extra mash. The hotpot was very nice but the mash was very dry. And, I  didn’t get the recommended extra gravy I requested. However, I did get two Vanilla ice creams. They really are very nice, smooth and creamy.

Finally, my catheter has been removed but, unfortunately, I haven’t pee’d since. So I was given an ultrasound of the bladder and, apparently, there wasn’t much pee in there so retention isn’t an issue. Bottom line, I have to up my fluid intake, then if I don’t pee they will catheterise me again. And we don’t want that.

With the catheter gone I am now in my jim jams which are much more comfortable than those horrible hospital gowns. And finally, at around 21:00, the dam burst and I managed a pee. This was followed by several others during the night. All were captured so the nurses could check the volume and, apparently, all is good.

9th April – Operation Day +9

Hallelujah, the surgeon has told me that I can go home, shook my hand and wished me well. I asked a nurse what the discharge procedure was. I was told that getting meds from the pharmacy was usually the thing that dictated when I could go, but that I should expect late afternoon or evening.

Shortly after this the ward sister came to see me, told me my meds had been requested and the indications were that they would be available sooner, rather than later. She told me to order lunch just in case it actually was later. In fact meds and lunch arrived together. I was told to have lunch and then the discharge process could be completed.

Wow, lunch was a celebration. Roast turkey breast, roast potatoes, sprouts, carrots, and, wait for it, banana stuffing!!!! Who ever heard of banana stuffing? Certainly not me, and it wasn’t for my palate.  Apparently, it is a carribean thing.

Anyway, food eaten, sister returned with my meds, my discharge papers and one last bit of education. New news to me was that I was going to have to inject myself with an anticoagulant.  She had a syringe and rolled up pad to simulate my tummy. I was directed in the correct use. The two carrier bags of meds contained, primarily, several boxes of preloaded syringes. I am to inject myself twice daily, for thirty days.

So, formalities completed, the porter arrived and I was soon loaded into a wheel chair and propelled to the main exit where my son-in-law was waiting to drive me home.

And there we have it. My hospital experiences around my robotic laparoscopic right side hemicolonectomy.

Bobs Bowel 9 – A Grand Day Out


Not so much a day out, more an afternoons tour of the hospital as today I have three appointments.

First up is an ECG. Making sure that my ticker is still ticking. No specific time for this, I just had to turn up and present myself at reception. I arrived at about 11:45 and was seen just after 12:00, which gave me time to find the venue for the next appointment.

This session, at 13:00, is with the Stoma Nurse. Although a stoma isn’t planned, this appointment is to talk me through the what ifs. Also to mark where the stoma could/should be if the surgeons deem one is necessary. Although the colonoscopy and subsequent CT Colonography show the tumour hasn’t spread my internal physiology could present other problems. The surgeons won’t know until they get inside and start rooting around.

So the stoma nurse explained all the why’s and wherefores of how a stoma is formed. She then had me lay on an examination couch while she felt my abdominal muscles and ultimately marked the primary site for a stoma on my right hand side but also marked a secondary site on the left side. Viewed from the front I now have a face on my belly with my navel as the nose. I was toying with the idea of drawing on some ears but various folks have deemed that a bad idea.

Having had the spots drawn on I was then shown how a colostomy bag should be affixed to my belly. She demonstrated how to fix the bag on, how to seal it and also how to empty it. And then it was my turn. To prove that I had been listening I had to apply a bag over one of the spots on my belly. Having passed that test I was told to keep the bag on for the rest of the day. “To see if I had a reaction to the adhesive”. To be honest I actuall forgot I had it on, until I went to bed, by which time I was to tired to mess with it. So I slept with it still on. The following day I found out how good that adhesive was. It was not an easy job getting it off.

The final part of my stoma education took the form of a kind of homework. I was given a number of bags to practice with. A couple of them had some kind of tablet in them to which I was supposed to add water. The tablets, when mixed with water, form a sludge of the same consistency as wallpaper paste. This was intended for me to practice emptying a bag. Needless to say, I failed in this task. And it is too late now.

After an hour or so in stoma class I was sent up to E Level to meet with a doctor for my formal preop interview. She went through many of the same questions that had been asked at each of my previous appointments. In this day and age, with the technology available, you would think that all staff in the hospital would have access to all of this information. Still, all the questions and drawing some more blood, and taking my blood pressure, took another hour.

I was eventually released to go home at just on 17:00.

An interesting point is that none of the folks that we visited knew when my operation was to take place !!! This, despite the fact that I had been informed the previous week.

So, my procedure is due to take place 31st March, 2025

My Prostate and Me – Part 8


My Prostate Operation Was Cancelled – After 3 + hours of waiting.

Well, it’s taken me a while to get my thoughts together after what turned out to be a really stressful morning. Truth be told, I had probably been stressing for quite a few days but had not realised……
As I said in my previous post, we had been requested to arrive thirty minutes earlier than the 07:00 originally planned. This was, supposedly, so that I could have my pre-operation meet with the surgeon and anaesthetist. So my wife and I dutifully presented ourselves at 06:30 in Theatre Admissions and were, almost immediately, shown through to a consultation room.
A nurse arrived, wrote out a luggage tag for my small holdall, and attached a fancier version to my wrist. So far all was moving along quite nicely. Next she started taking / checking my details and very soon I began to wonder what the point of the pre-operation assessment was since all the questions were repeats of Wednesday afternoons interrogation. My doubts further increased when she informed me that she didn’t have my blood details nor my ECG results both of which were part of the Wednesday session.

Already somewhat stressed, in anticipation of the forthcoming procedure, I was beginning to get a little terse. Not just that, but I was also beginning to wonder if they knew what I was in for. A thought that was reinforced a few minutes later when I was invited to get changed. Some of you will remember from my previous visit, for the template biopsy, that I had been given a gown which was way too small and couldn’t be secured. In an attempt to prevent the same indignity I asked for a larger gown. Yet again I was offered a small size. It was obvious that it wouldn’t even fit across my shoulders, let alone do up at the back. Almost grudgingly I was offered a “bariatric” gown. I muttered “whatever that is ” under my breath. Obviously not under enough, as I was informed “oh they are huge !!! “.
As she handed me my bell tent I was asked “what is it you are having done? ” I replied “my Prostate!! “. “Then you should take everything off!!” she informed me.

With that I was left to change. The gown had enough room in it to hold a small disco but at least I could fasten it up. And, best of all, my new dressing gown was of sufficient length to reach the lovely sage green pressure stockings I was sporting. This new vision of sartorial loveliness was finished off by my new suede moccasin style slippers. Now, properly attired, I returned to sit with my wife in the consultation room.

There then ensued a, seemingly, long wait. In truth it was probably only minutes but eventually the anaesthetist arrived and after he had confirmed my details, and repeated many of the questions from Wednesday afternoon, and from earlier this very morning, he ran through what the order of play would be.

For the first time the duration of the operation was mentioned. I had been under the impression that this was to be a two hour procedure. Nope, this was to be four to five hours in duration. Suddenly the first penny, of a whole bag full, dropped and the true magnitude of this operation began to sink in. Five hours!!! He also mentioned that it was possible that the robotic basis of the operation could switch to full open surgery should any problems arise. This had always lurked at the back of my mind and, to be honest, that is where I kept it filed. That is, until the session with the surgeon.

Fast forward a few minutes….

Mr. Wilkinson talked us through the operation and thoroughly explained risks. How little I knew. Over the last couple of years I have reviewed the implications of having this operation and thought that I was pretty well versed. Trouble is, I had been focusing on the post operative time frame. I had not paid too much attention to the detail of the surgery itself.

He, Mr Wilkinson, listed the various risks involved with a radical prostatectomy, starting with how difficult it was going to be to find the little sucker. Especially given the route taken during keyhole surgery, in through the abdomen then turn due south and head for the pelvic zone.

Add to that the fact that the robot has fixed length (but short) arms. I know some folks who are like that when it comes to buying their round in the pub. Next up was the proximity of the prostate to my bladder which introduces a risk of damage over and above the urinary incontinence which is to be expected. Moving swiftly on, next on the list is the proximity to the bowel.

New news here was that the prostate could be stuck to the bowel and that this could have been caused by, if not caused by then exacerbated by, the biopsies I had as part of the original diagnosis and active surveillance regime. At no time was it ever explained to me that the biopsies, TRUS or Template, could have negative impact on future surgery. Apparently during the prostate operation they mighty have to peel the bowel away from the prostate. The biopsies could contribute to any adhesion between the bowel wall and my prostate and the act of separation could cause damage that would have to be repaired. If such damage occurred it would require a colostomy to allow the repair to heal. Obviously, once the repair was healed there would have to be another operation to undo the colostomy. My four to six weeks recovery period suddenly looked to be extending with the possibility of the further surgery and recovery period.

Continuing on with the inherent risks of this surgery, let’s not forget that during the procedure I would be tilted head down by approximately 30 degrees. This would cause my innards to slop towards my head, thereby putting pressure on my heart and lungs. Apparently this is a negative thing.

The coup de grace was  the underlying small print of robotic surgery, if they ran into any difficulties, i.e. the Da Vinci machines short arms couldn’t reach, they would revert to the good old fashioned procedure and open me up from stem to stern.

Bottom line for me was that, due to my 18.5 stone (259lb) weight, the risk factors were double the norm.

This operation, and the potential ramifications, was taking on mammoth proportions. And now, the anxiety I was already feeling, was ratcheting up to whole new levels. I really was beginning to feel that I was making a big mistake. But, despite my misgivings I still signed the consent forms.

You may well ask “Why?” Why proceed when I was obviously having doubts.

I can offer no sensible answer. Guilt, Fear, Not wanting to let anyone / everyone / myself down.

After Mr Wilkinson left, my wife said “I fully expected you to refuse to sign that “.

Her statement just added to my anxiety and it was at this point that the anaesthetist returned to ask if I would agree to an epidural. As there was the possibility of my robotic surgery converting to full open surgery he thought it might be a good idea to give me an epidural to help with the pain management.

It was then that I experienced what I can only describe as a “crisis “. It wasn’t that I was crying, there was no wailing and gnashing of teeth, just that my mind was in total turmoil. I was in a flat spin. I really don’t know if I was coherent but I do think I was borderline having a panic attack. I couldn’t answer him. I tried to explain that I was seriously thinking that I shouldn’t go ahead with the surgery. He sat there patiently until I regained my self control and eventually I informed him that he should go ahead with the epidural.

So I was still going ahead. I think that I probably convinced myself that it was normal to have doubts and that I was probably magnifying the issues out of all proportion.

At around 09:00, my wife, took herself off to work and I went to sit with the other surgical victims where I waited for nearly an hour. During this time I was brought a cup of tablets, my antibiotics, anti vomiting, anti anti everything etc etc. And a small cup of water to wash them all down. This was the only drink I had since 05:30. The nurse that delivered them said something that I didn’t quite catch but when I asked she apologised for the long wait and informed me that there was meeting underway to discuss if my operation was to proceed as there was an issue regarding availability of a bed for me after my operation.

Around 10:00 Mr Wilkinson arrived and took me off to a consultation room. He explained that my operation had been delayed due to the beds issue. That he and the other consultant, Mr Solomon, had decided at around 09:30 that the operation was a no go. At around 10:00 the management had given permission for the operation to proceed but by then this was considered to be way too late. The operating list for Friday was morning only, such a late start would mean changing members of the surgical team mid operation and a probable finish time around 17:00. Adding to the risks previously outlined and putting the surgical team under the clock, more so than they would normally be. All in all, not good for the patient, Me! And not good for them.

To say that I was relieved would be an understatement. I had a long chat with Mr Wilkinson about my earlier “crisis” and whether surgery was the right option for me. The net of this was that the reschedule of my operation would be deferred until after Christmas.

To be quite honest,my wife and I are taking this time to rethink if this is the right way to go. Right now it doesn’t seem that surgery is for me.

I think, fate was on my side, that this operation was never meant to be.