Other Medical Matters


Although the tumour in my colon is trying to hog the limelight we have found time to deal with other medical matters.

Gerry’s Clinic Appointment

First up my wife had an appointment at St Mary’s Community Health Campus in Portsmouth. The appointment was made back in December and was scheduled for 13:00 20th February. We arrived twenty minutes early. As per our last visit there was no one in reception.

Reception @ St Mary’s – Unmanned @ 13:15 Thursday 20/2/2025

So nobody to register the fact that we have arrived or to inform the clinician.

While sitting twiddling our thumbs I was reading the various notices one of which caught my eye. It was directed at deaf patients, advising them to go to reception who would advise the clinician of their presence as they may not hear their name being called. Brilliant, if there had been a receptionist.

This lack of receptionist became an issue for us as we still had not been called by 13:20. So I can’t speak to anyone and having wandered around to see if our clinician was present I decided to phone the hospital.

Amazingly, someone answered the phone almost immediately. I explained our situation. Her first comment was that all appointments had been cancelled. Of course I challenged this, asking when and how patients had been informed.

In the meantime she is sifting through my wifes notes from her last appointment. Informing me that there was nothing about a follow-up appointment, no record on the system, no indication that a notification had been sent out.

We were able to tell her that the clinician had, at the last appointment, written the appointment details on the original invitation letter.

We were promised that an incident was being raised and that we would be contacted to discuss it further

The net of this was that we had had a wasted journey, 14 mile round trip, as well as having to pay for parking.

Fibroscan

Later this same day I had a totally different experience. At short notice I was invited to attend the Hepatology Department for a Fibroscan. I have these every six months or so since I was diagnosed with NAFLD (Non Alcoholic Fatty Liver Disease).

If you have never had one of these it is probably simplest of scans. It is a form of ultrasound and the sensation for the patient is that it feels like someone has flicked you on your side.

So, just before 16:00, I presented myself at the department reception. Yes it was manned!! Hardly had my bum hit the seat in the waiting area than I was called through to the treatment room. A few minutes later, after being scanned, I was on my way out of the hospital.

Gerry’s Clinic Appointment – Follow Up

The following day we received a call from the clinic supervisor. She was very apologetic and put our experience down to human error. Nothing like stating the obvious but they were doing something, and quickly.

So we have a new appointment set for next week.

We also discussed the lack of receptionist. Obviously the receptionist is entitled to a lunch break but there should be some form of cover. Especially when there are active clinics underway. If no receptionist then there should be some better signage giving useful information like telephone numbers to be called.

If I didn’t have a smart phone with access to the internet I would have been stuffed.

Bobs Bowel 7 – Outpatients Anaesthetics


Thursday 13th February, and another appointment. Once again, at the Queen Alexandra Hospital. I’ll soon have my own allocated parking space if my visits carry on at this rate.

This time my appointment is with an anaesthetist in the Outpatients department.

My appointment was at 10:00, and right on the button, I was whisked away for some observations. I had my blood pressure, weight, and height measured, again. I was also given an ECG.  And then it was back to the waiting room where I had time to make friends, playing peek-a-boo with a toddler.

After a short while my name was called by the anaesthetist wearing an amazing pair of electric blue shoes.

After the usual pleasantries she revealed that we had met before. Ten years ago, when I went in for the brachytherapy treatment for my prostate. She was the anaesthetist who drew the short straw for my procedure. As a patient I was not very cooperative, not on purpose. With me sat on the table in theatre she attempted to give me an epidural. Three times!! My body just refused to play ball, would not give up my spinal fluid so no further attempts were made.

Once the procedure was underway it was time for me to misbehave again. I unconciously decided to vomit. She unfortunately had to deal with that, and call in Dynarod to suck out my tubes.

I apologised to her as in my head I was to blame, having had rather a lot of cheese as my last meal the night  before the procedure. Nobody told me that they tilted you head down to insert the nuclear seeds. She showed me the copious notes taken following that little episode but she was quite magnanimous. Noting my, as yet undiagnosed, type 2 diabetes which apparently can have the effect of slowing down your stomach process, causing “pooling” which in turn can cause regurgitation.

After reminiscing about old times we got down to the business in hand. We had the inevitable chat about my health in general and specifically focussing on weight, fitness and diet.

I was given a thorough but gentle arse kicking. Likening preparing for the operation to an athlete preparing for the olympics. Apparently the procedure will last about four hours and, although I will be unconcious laid out on the table, for my body it will be akin to running against Usain Bolt. So, as she put it, I need to be in the best possible shape to deal with the procedure but also the fitter I am the faster I will recover.

Exercise and weight loss are the order of the day, supplemented by plenty of practice with my spirometer. She wants me to up my daily walking. That shouldn’t be hard since it is negligible at the moment.

We also talked about diet with regard to my diabetes which can have a negative impact on my post op recovery. And right there is where I get into trouble.

In general the medics extol the benefits of a balanced diet, with plenty of fruit, vegetables, nuts, seeds and so forth. Quite often promoted as the mediterranean diet. Below is a typical chart promoting a balance diet. All stuff that I like.

Due to the location of my tumour which is partially blocking my bowel I have been advised to stay on a low residue diet which conflicts with the idea of a balanced diet. Which in turn also conflicts with a diabetic friendly diet.

What that means is that the only food that I can eat from the green zone is carrots which have been peeled and cooked until they are soft. I can have cucumber but I have to peel it and scoop out the seeds. From the yellow zone I cannot eat any of the wholegrain items. I can have potatoes cooked without their skins and not shown I can have white bread, rice and pasta.

Hang on a bit, actually, for my diabetes I should not be eating any quantity of carbohydrates as this gets turned into sugar, bad for diabetics. So between the diabetes and my tumour everything in the yellow zone is pretty much a no-no.

Things do get a little better when we look at that strange pink zone. I can eat the tinned tuna, chicken, fish, eggs, and mince. Although my tumour says no to fish skin and bones like you might get with sardines and pilchards. Meat is fine but no gristly bits, no bacon rind etc.

And on to the blue zone where I am allowed small amounts of cheese and milk.

And so, I am resigned to eating a mainly protein diet, not quite leaping into the full carnivor diet. Supplemented by squidgy overcooked root vegetables.

As if meal preparation wasn’t already difficult enough.

Ah well, as the anaesthetist says, it is only for a few weeks.

Sad to say, I still don’t have a date for my op.

Bobs Bowel 6 – Iron Intravenous Infusion


Monday 10th February and, as I stated in my last post, although I don’t have a date for the surgery the NHS is hell bent on keeping me busy.

Following my colonoscopy I was informed that I was borderline anaemic and that I would need an Iron Infusion before my surgery.

Today is the day and my appointment was scheduled for 10:00. However, my iron prescription has not arrived.

So, sitting waiting. It is 10:30 !

It’s now 11:10, and after much searching, the nurses, three of them, have managed to cannulate me. Apparently, my veins were playing hide and seek. Not helped by my not having had a drink before arriving in hospital.

I did make a cup of tea, but traffic news indicated problems, so we left early. My tea is still sitting on the kitchen counter.

I am now hooked up to the iron  juice,

and literally, it has just entered my arm.

The infusion should take about an hour.

Job done in just under an hour. I’ve been unplugged, given a cup of coffee and an egg mayo butty. Thirty minutes to check there are no ill effects.

Thirty minutes was up. Took my blood pressure, blood gas, and temperature. All good. The canula was removed, and I was discharged.

It’s now 13:30 and I’m sitting in the hospital cafeteria having a proper coffee. I’m killing some time before heading up to visit a friend of mine who has been a patient here for the last few days.

As for me, I have go and get a blood test in two weeks to see if the iron juice has done its job.

More later ….

Bobs Bowel 5 – Surgery School


Monday 3rd February and the preparations for my impending surgery continue apace. The latest adventure was a two hour class at Surgery School.

I know the NHS is constantly strapped for cash but putting me through a crash course in surgery doesn’t exactly fill me with confidence that my outcome will be positive.

Of course the aim is not for me to carry out DIY surgery. No this session was all about preparing me for surgery and getting me as fit as possible both for the procedure and the recovery period after.

Getting fitter, they say, will help reduce the risks associated with the surgery. Risks such as chest infection, blood clots, kidney problems, wound infection / healing.

To this end the speakers were focusing on exercise and nutrition, the importance of a balanced diet. Unfortunately, my cancer is such that it is partially blocking my bowel. Because of this I am continuing on a low residue diet which means I cannot eat many of the “healthy” foods. No wholegrain breads, no high fibre vegetables such as onions, leeks, cabbages, and cauliflower. Also many of my favourite salad vegetables such as tomatoes, peppers, radishes, celery and baby corn are excluded. In addition to the low residue diet I am also on a course of laxative, Molaxole. To help keep things moving.

Thankfully I am not a smoker as that is definitely a no-no. Apparently smoking can have detrimental effects on ones ability to heal and also the well publicised impact on the respiratory system.

Similarly, drinking alcohol is frowned upon. My consumption in general has reduced dramatically over the last few years, to the point where I might only have a pint of beer or a glass of wine every week or two. Total abstinence won’t be an issue for me.

Preferably they like patients to totally abstain from drinking and smoking on the run up to surgery and offer help to those who need it.

And finally, that brings me to the contraption in the photo below. No it isn’t some kind of sex toy. This beast is an Incentive Spirometer.

Incentive Spirometer

All folks attending surgery school were given one of these. The purpose is to reduce the risk of lung complications following surgery.

Use of the incentive spirometer is part of the iCOUGH process a program implemented by hospitals nationally and internationally. The acronym ICOUGH stands for: Incentive Spirometry, Coughing and deep breathing, Oral care, Understanding, Getting out of bed at least three times daily, and Head-of-bed elevation. The program emphasizes deep breathing exercises to keep lungs healthy and prevent lung problems. Oral care, patient and family education, getting out of bed, and head-of-bed elevation are also important components of the program.

We were instructed to use this device three time per day prior to surgery, and every hour following surgery.

I still don’t have a date for the actual surgery but the medics are focussed on getting me fit and also preventing me from getting bored.

Bobs Bowel 4 – NHS Healthcare


After years of paying National Insurance there is no doubt I am getting my moneys worth from the NHS. After playing the poo sticks game I have had a Colonoscopy, CT Colonography, a session with a colo-rectal consultant and have been booked in to Surgery School.

My home phone seems like it is a hot line to the QA (Queen Alexandra Hospital).

Following the consult I received a text message informing me that a call had been booked by the Care Coordinator !!! No explanation of why. Obviously I could make a pretty goood guess. But I still had to confirm back to them that a call before midday on the 31st was acceptible. I also took the opportunity to ask what the call was about. The response was almost instantaneous. Lisa, the Care Coordinator from my GP Surgery, having seen various letters between the hospital and my GP, was making a courtesy call to see how I was doing with the ongoing investigations.

So Friday 31st arrived and it turns out that Lisa had very little information. I have since seen the letters that my GP was sent. Not very enlightening. So I brought Lisa up to speed, giving my history so far, up to and including my consult on Tuesday.

She in turn told me about the services that were available to me leading up to the surgery and what support they can provide after I return home. This includes councelling, assistance with obtaining benefits etc. After a very pleasant chat we agreed that she would call me on 28th February to see how I was going. Hopefully I will be home recuperating after the operation.

As I said my phone has been very busy. On Friday morning I missed a call from Julie, one of the colo-rectal nurses. She left a message inviting me to call her back. I returned her call and retaliated by leaving her a message in her voicemail. After one round of answer phone tennis she called me.

She asked if I had heard from the anaesthetist, which I had not. She told me that they had spotted that I was borderline anaemic and that I needed to be scheduled in for an iron infusion/transfusion!

Two weeks ago, the doctor that did my colonoscopy had told me about this. I had forgotten but I am glad that the anaesthetist is on the ball. Julie told me that I should probably expect to be contacted early next week, and that if I didn’t hear from them by Wednesday, to call her.

Later that day I received one of those neutral NHS appointment invitations. Informing me that an appointment has been made for 10:00 on Thursday 13th of February. What is this for? Is it for my iron infusion, or just a face to face with the anaesthetist? There is no information about what if anything I need to take with me. Nurse Julie told me I should arrange a lift for when I have the infusion just in case I’m not fit to drive after. There is nothing in this invite to clarify so I will have to call them on Monday.

One thing I will say for the NHS, once you are in the system they do look after you. So far, I have nothing but praise for the staff that I have been involved with. With the one exception, the CT Colonography, they have ensured that my experience thus far has been reasonably pleasant.